The decade of the nineties....an incredibly difficult time, already described on the 'about me' page. By 1990, all twelve of  a close family of aunts and uncles have died, along with her beloved father in 1986. Her mother makes the difficult decision to sell the Pageland home and move to Florida. 

The loss of friends when CFIDS hits is devastating. Even more devastating is the discovery that few doctors know about this illness, that there is no magic cure and--worse--she is faced by ridicule from doctors who tell her
it's all in in her head. In 1996, her mother dies. Suddenly, age no longer matters when a last parent dies. It's hard.

 She has now lost her voice for over three years and it's clear that the doctors have no interest in trying to discover why   She has become something many doctors hate, save a few gems---an unsolvable problem.  A problem their tests can't cipher.

In the late nineties, a cranio-sacral therapist begins working with  her and also becomes a solid friend. For the first time some of the blurred vision begins to lift, as well as the ability to keep her balance while walking. Then she finally discovers a good doctor. The voice? Allergies. Work with the sinuses and she was able to talk again. In 1999, almost a decade later, with the generous help primarily of these two people she is able to sign onto the computer and send and receive e-mail, then begin writing poetry.

Some of the friends who stood by ......thankfully new ones met through the internet.

 


(Barbara, friend since 1970, Margie since 1980) 



Lloyd (met on the internet, now friends in person)  



(Marilyn, friend from college)  






(kev, online friend since 1999, from Canada)


(Eloise, CF therapist and friend since the late nineties)



(J
oe (friend and colleague in the late sixties, now rediscovered)

 


(Mosaad (friend from Cairo)

 


(Lydia, online friend since around 2001 from Wales)


 Below is a late nineties photo  taken at the front door of the CFIDS Clinic. Notice the sign above their door.

 


(Biodoron Treatment Center, Holly wood, FL)

The rest to be continued in 'real time'  Shall we see what this decade brings??

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